The Case for Inclusion 2019

UCP Case for Inclusion Report 2020

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Case for Inclusion 2020

About the Case for Inclusion

Since 2006, the Case for Inclusion has been a leading source for data assessing how well state Medicaid programs serve people with intellectual and developmental disabilities (I/DD) and their families. The most comprehensive report of its kind, the Case for Inclusion gives lawmakers, advocates and other disability champions a sense of the scope of the challenges we face—a necessary first step to creating a roadmap for how to drive progress in the states to ensure that individuals with I/DD are included, supported and empowered in the community.

About United Cerebral Palsy

United Cerebral Palsy educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with various disabilities. Together with 60 affiliates, UCP has a mission to be the indispensable resource for individuals with cerebral palsy and other disabilities, their families and their communities. UCP affiliates in the US and Canada provide supports to approximately 155,000 children and adults on an annual basis—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For 70 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with its member affiliates, parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 70 years, and beyond. Learn more at

About the ANCOR Foundation's Included. Supported. Empowered. Campaign.

For 50 years, the American Network of Community Options and Resources (ANCOR) has been a leading advocate for the critical role service providers play in enriching the lives of people with intellectual and developmental disabilities. As the 501(c)3 charitable arm of ANCOR, the ANCOR Foundation exists to expand the commitment and capacity of providers and communities dedicated to improving quality of life for people with disabilities. A critical part of this effort, the ANCOR Foundation’s Included. Supported. Empowered. campaign exists to lift up the successes of people of all abilities and highlight the essential role providers play in bringing those successes to fruition. Learn more at


The Case for Inclusion 2020 and its accompanying key findings report were authored by staff from the ANCOR Foundation and United Cerebral Palsy (UCP). Significant contributions were made by members of the Case for Inclusion Steering Committee, to whom the authors extend their deep gratitude: Jeanne De Sa, UCP Board of Trustees; Marybeth Fitzgerald, Gillette Children’s; Becky Hansen, UCP of Los Angeles, Ventura & Santa Barbara Counties; Anne Hindrichs, McMains Children’s Developmental Center; Ellen Jensby, Alliance Colorado; Fernanda Morrison, UCP Policy Committee; Valdes Snipes-Bennett, Ph.D., UCP of Washington, DC & Northern Virginia; Rita Wiersma, Community Involvement Programs; and Diane Wilush, UCP of Georgia. We also extend our gratitude to John Butterworth, Ph.D., of the Institute for Community Inclusion at the University of Massachusetts Boston (ICI) for his review of the ICI data cited, and to Mary Lou Bourne and Mary Sowers of the National Association of State Directors of Developmental Disabilities Services for their review of the National Core Indicators data cited.

Deep gratitude is also due to the slate of consultants and strategic advisors who contributed their expertise to this report and its dissemination, especially Tarren Bragdon for his strategic guidance on data collection and report development. In addition, the authors wish to thank Beth Jacob, Anjali Cadambi, Zoe PiSierra, Dean Pearce and Giovanna Sheerin of BerlinRosen for the development and execution of the public outreach strategy. We thank Michael Walker and Jason Melancon of DataMadeUseful for the development of the Case for Inclusion website and accompanying data applications. We are also grateful to Karyn Baskette of Yondee Designs for the design and layout of this report, and to Franziska Racker Centers in Ithaca, New York, for furnishing many of the photos included in the report. 

Finally, the Case for Inclusion would not be possible without the valuable contributions of several members of the staff of UCP and the ANCOR Foundation. From UCP, the authors are grateful for the efforts of Armando Contreras, Michael Ludgardo and Anita Porco. From the ANCOR Foundation, the authors are grateful for the efforts of André Floyd, Lauren Kennedy, Sean Luechtefeld, Ph.D., Jerri McCandless, Shannon McCracken, Sarah Meek, Barbara Merrill and Gabrielle Sedor.

Contact Us

If you have questions about the Case for Inclusion, including inquiries about the report, this website and/or the data included herein, please contact Sean Luechtefeld at or 703.535.7850, ext. 100.